What do we want to know from a chatbot? Identifying inquiries among adult survivors of childhood and adolescent cancer in South Korea.
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PURPOSE: The impact of diagnosis and treatment on adult survivors of childhood and adolescent cancer gives rise to unique informational needs, highlighting the need for alternative methods to address their questions. However, topics of interest to this population remain unclear. This study explored the primary inquiries expressed by survivors when engaging with a chatbot tailored to address their needs and examined how these inquiries related to participant characteristics. METHOD: A sample of 119 adult survivors of childhood and adolescent cancer completed an online survey regarding inquiries for a tailored chatbot. A comprehensive three-step approach to topic modeling and content analysis was conducted. RESULTS: The analyses classified 1237 questions into 11 topics: health and daily life management; psychological distress; cancer history disclosure; coping with side and late effects; causes, diagnosis, and treatment of cancer; social policy and services; academic continuity and school reentry; social relationships and reintegration; concerns related to cancer recurrence; peer survivors and communication; and social stigma and coping. The topics differed based on age group, education level, recurrence, age at diagnosis, and time since diagnosis. CONCLUSIONS: These findings underscore the importance of addressing diverse informational needs regarding health and psychosocial concerns among cancer survivors. Findings also highlight the critical role of oncology professionals in overseeing digital triage and psychosocial assessment and delivering tailored support to meet the concerns of survivors as they navigate challenges and opportunities in adulthood, ultimately promoting their overall health and well-being.