Preliminary Validation of a Self-Reported Functional Outcomes Tool for Children with Extremity Tumors: Translation into Persian and Assessment of the Reliability and Validity of the pTESS-Leg Questionnaire.
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BACKGROUND: With the advancements in treatment for limb sarcomas, including limb preservation and functional restoration, it is essential to assess the functional status of pediatric patients. This study aims to translate and validate the Pediatric Toronto Extremity Salvage Score (pTESS-Leg) questionnaire for children with extremity tumors into Persian. METHODS: The methodology involved a forward and backward translation process, followed by a review from an expert committee to ensure cultural relevance. Reliability was assessed using Cronbach's alpha for internal consistency and Spearman correlation for test-retest reliability. Validity was evaluated through the Content Validity Index (CVI) and Content Validity Ratio (CVR). RESULTS: The findings indicated acceptable internal consistency (Cronbach's alpha = 0.95) and significant test-retest reliability across all questions. The CVR reached 100% for all items, indicating adequate content validity. These results affirm that the Persian version of the pTESS-Leg tool is a reliable and valid measure for assessing functional outcomes in children following treatment for extremity tumors, facilitating improved evaluation and comparison of patient outcomes in clinical settings. CONCLUSION: The Persian version of the pTESS-Leg questionnaire is a reliable and valid tool for assessing functional outcomes in children with extremity tumors. This study highlights the importance of culturally adapting assessment instruments to enhance treatment outcome evaluations and facilitate comparisons across studies.