Experiences of parents of children with congenital nevi: A qualitative study.
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PURPOSE: A congenital nevus is a mark that is present at or develops shortly after birth. Its distinct appearance can create aesthetic disfigurement and social stigma. Parents experience various psychosocial impacts due to their child's nevi. This qualitative descriptive study considered the lived experiences of parents of children with congenital nevi. DESIGN AND METHODS: Data were collected from 10 participants (8 mothers and 2 fathers) through remote, semi-structured, individual, and in-depth interviews conducted between February and June 2024, and were analyzed using Colaizzi's method. RESULTS: Three key themes emerged: family dynamics with a child with congenital nevus, the long treatment journey, and social determinants of adaptation. Parents reported significant emotional distress upon their child's diagnosis, with fluctuations during the treatment process. Role reallocation and mutual support enhanced family cohesion, and children's involvement in decision-making was encouraged. Social stigma and financial strain affected the family's adjustment process. CONCLUSIONS: Parents of children with congenital nevi face significant emotional challenges, social stigma, and need for collaboration throughout the treatment process. Family centered, multifaceted support is essential for addressing these issues. PRACTICE IMPLICATIONS: Healthcare professionals should provide parents of children with congenital nevi with emotional support and counseling. They should enhance social support and collaborate with mental health professionals to facilitate ongoing counseling and treatment while also advocating for expanded health insurance coverage and the equalization of uncompensated care as well as promoting education and campaigns to reduce stigma.