Parenting adolescents and young adults (AYA) with cancer: experiences of AYAs and parents of AYAs (with cancer).
AI interpretation is pending for this paper.
Open original publication →What the AI sees
Not AI summarized yet.
Research significance
Pending deeper interpretation.
Source abstract
PURPOSE: The diagnosis of cancer in adolescents and young adults (AYAs) is a difficult experience to manage, since it affects their physical, social and emotional development and prompts significant life changes. Parental support, which is essential to address the practical and emotional challenges faced by AYAs, becomes central. However, research on parenting in the context of AYAs with cancer remains limited. Our aim is to describe parenting experiences from the dual perspectives of AYAs with cancer and parents of AYAs (with cancer) in order to deepen understanding of AYAs' complex needs and the adaptive strategies parents employ to support them. METHODS: Semi-structured interviews were conducted individually with AYAs diagnosed with cancer (n = 29), with their mothers (n = 17) and fathers (n = 9). The recorded interviews were fully transcribed and analysed using reflective thematic analysis. RESULTS: One theme identified among AYAs was "needing parents", encompassing two sub-themes: "going backwards" and "dependence". A key theme identified among parents was "being a good parent", which included two sub-themes: "needing to be constantly present" and "parenting strategies", encapsulated in the statement: "we do what we can". AYAs facing cancer express a significantly greater need for support than under normal developmental circumstances. In response to these needs and expectations, parents exceed their customary roles by providing intensive support, often going beyond their usual functions. CONCLUSION: This complex dynamic highlights the impact of cancer on AYA development, particularly regarding their pursuit of independence and autonomy.